Thursday, September 25, 2008
I wish y'all could hear her night time prayers. It's the cutest thing. She's heard me praying specifically and now she's doing it. She says, "Lord, please keep healing Hannah's body(she talks about herself in third person still). thank you it. Heal her brain and it's 'mical(chemical) and 'lect'ical(electrical) system. Help her 'nition(cognition) to keep improve. Thank you for healing her body. We love you Lord. Amen" She leaves words out here and there but the gest of her prayer is that she thanks God for his healing and asks him to continue it. Then she asks God specifically to touch her brain and it's chemical and electrical system and her cognition to keep improving. It's just darling to hear.
Please keep her in your prayers
Monday, September 22, 2008
David and I attended Central Baptist last night with Hannah. They took up a special offering for her to help with the travel expenses we'll have going to Ohio in March. It's been incredible how these people have reached out to us. They've really helped take a load off us with the help they've given. These people are amazing. I'm so thankful that we've gotten the opportunity to get to know them.
People are reaching out to help in ways I never imagined. It seems like every week someone emails me or drops by with a helping hand. They will never know what they do for our spirits. It is so hard some days to just keep your chin up. Yesterday there was a hymn sung about heaven and it's an upbeat, uplifting song. I stood with tears in my eyes. I don't want to lose my girl, and for a moment I almost panicked as I tried to think of someone on the other side that would care for her if God were to take her. I know that's dark, but you can't help but think about things like that when you've been faced with the situations we have lately. It sneaks up on you when you least expect it. You hold on and you present a tough front, but out of the blue when your guard is down, things like that sneak in. My panic eased though as I allowed myself to think about the fact that there will be no more pain, sickness, fear, or sorrow there. I don't want to lose my girl. I don't want to lose any of my loved ones, but I don't have to fear for them. Their Father will be there and He loves them more than I ever could. Sometimes you just have to let yourself think through these things so you can remind yourself of the awesome truth that everything is going to be o.k. No matter what.
Sorry for the ramble. LOL! Sometimes I just let my fingers go and Lord only knows what they type. Please continue to pray for Hannah.
Sunday, September 21, 2008
Saturday, September 20, 2008
Friday, September 19, 2008
The neuro called me when we got home and he is upping her lamictal to 50 mg's morning and 75 mg's night. He also called in a drug called clonazapam that he wants me to give her every 6 hours while she is sick in hopes that it will keep a status at bay.
I'm worried. As usual, right? My worry right now is that I feel like I'm drugging her. I'm giving her tylenol every four hours, and ibuprophen every 6 hours, clonazapam every 6 hours, 75 mg's of lamictal at night, and 300 mg's of zonegran at night. Plus an antibiotic. It's incredible.
Hannah has been sick since May. She never gets more than a day or two where she doesn't have some kind of illness going on. I'm taking her to her pediatrician on Monday and I'm also calling a immunologist/allergist in Benbrook on Monday. We are going to get to the bottom of this. Good or bad news!
Right now she is awake and doing o.k. She's laying up in the bed watching Strawberry Shortcake with David. Please continue to keep her in your prayers. Me too, please. I'm weary.
Things have not been too good around here lately. Really stressful. Melt downs have increased, but if a seizure has been brewing then that explains them because she's sometimes really cranky a couple of days before she has one. On Tuesday she basically cried most of the day.
Yesterday I had lunch with her at school. I was a little leary of it because routine is really important to Hannah. Kids with autism actually feel physical pain when their routine is interupted. So, I debated most of the morning and decided to just try it. I think it went alright. She did think she was supposed to come home with me but seemed to adjust when I explained I'd be back later and for her to go with her teachers. It felt good to do something "normal" with her. Something I did often with my boys.
I'll update as needed. Please pray she gets over this virus or whatever it is.
Wednesday, September 17, 2008
9/14/2008, 6:38 p.m. EDT
By AMANDA LEE MYERS The Associated Press
PHOENIX (AP) — "Man's best friend" doesn't go far enough for Buddy, a German shepherd who remembered his Michigan training and saved his owner's life by calling 911 when the man had a seizure.
And it's not the first time Buddy has been there for owner Joe Stalnaker, a police officer said Sunday.
On a recording of the 911 call Wednesday, Buddy is heard whimpering and barking after the dispatcher answers and repeatedly asks if the caller needs help.....
Read the rest of the story here....
Tuesday, September 16, 2008
Sunday, September 14, 2008
My name is Aljax and my best friend in the whole world was Karen but now it is you though I will always love Karen. She saved me when I was a puppy. I lived for a while with a boy named Matthew but he always wanted a Chihuahua size dog and me, well I am not even close to that size LOL Actually I am quite large! I hope that is okay with you. I am the cutes dog ever! At least that is what Karen tells me every day. I am a master tracker with loads of experience! I can't wait to meet you. I am just so excited. It will be so good to be with a boy again and I know you will love me even though I am big, right? Can I sleep with you and be your best friend? Hurry and get here my best buddy Tristan, I am waiting for you! xoxo Ajax
I have been so worried about you! Everyone says you are back home now and all is safe and sound that is so good to hear! I am sorry you have so much clean up to do.If I was there I could help you pick up all the sticks in the yard. I love to do that. I have been working very hard learning your scent from the shirts you wear so I will know you as soon as I meet you! I want to do my very best. I have worked so very hard for this moment. My name is Canyon and my sister Sequoia and brother Yosemite are also in the class as well as our half brother Barley. Our Mom is Allie and our Dad is Hobo and we were born at 4 Paws. I have been working very hard since the day I was born for this day. I am a boy dog but that is okay.If you want to play dress up or have tea parties I will be happy to play with you! Hurry up andcome up here to 4 Paws where it is DRY :0) BTW I hope no more of those big storms ever come our way once I move down cuz I will just have to scare them off! Hurry and get here OKAY????????????????????? XOXO Canyon
HELLO BEST BUDDY! OR IS THAT BFF? I know that is the modern way though I never text myself. My name is Sequoia and I am a member of the National Parks Gang. My Mom is Allie and my Dad is Hobo. I have 2 brothers and a half brother in this class, Yosemite and Canyon and then Barley who's Mom is Opal. Apparently my Dad is quite the "MAN" here at 4 Paws because I have a VERY large family! I hope you do not mind that I am a girl. really I am not a girly girl like Piper, I am more of a tomboy like Gracie. I mean you do not have to dress me in Pink or any thing like that. You can put me in Green Camo and we do not have to play dress up unless we dress like cowboys and Indians or something like that. I love the tracking game best of all. I hope you like it too. I bet you will because there is always a really cool prize at the end of the track! Hurry up and get to Ohio so I can teach you how to play! xoxoxo Sequoia
Hey Erik, My name is Blue and I am a boy, Black Lab. My real name is Blue's Clue's but they all call me Blue. I am a fun dog and can't wait to play with you. I hope you like to play ball and play the tracking game. Do you like to eat? I love to eat. I love hot dogs especially and Peanutbutter in my Kong. I love Tennis balls too! I want to go everywhere you go and do everything you do and play and play and play! Can I sleep in your room? Will you really, really be my best friend? I never had a best friend before and I have wanted one for so very long. Now it is almost the day you will come and meet me! Not long now. I am so very excited! Hurry up my best buddy ever and get here so we can start having fun! xoxoxoxoxo Blue
Thursday, September 11, 2008
Wednesday, September 10, 2008
Hannah got her glasses today. She hasn't been too thrilled about it so far. The first picture she's striking that pose that was cute but is starting to get annoying! LOL! I'm not sure why she started that. The second one I got while she wasn't looking and the third one I caught her with a McNugget in her mouth. LOL!
Tuesday, September 9, 2008
The people at Central Baptist were very generous. The donations covered the entire back porch. Rachael and her team worked hard and tiringly to put everything out the night before. I came by to see if there was anything I could do and was unprepared for what I saw. I hadn't dreamed there'd be that much stuff donated. I cried on the way home that night. That wouldn't be the last time I cried either. We all got up Saturday morning and got to the sale about 8:30. It started at 8:00. They had already made $500 when we got there. People were so generous in their donations for the things they were purchasing.
Hannah was enjoying the playground with her brothers. I looked over and she was in a swing. I was so excited. She had never stood the swing before. It was a sensory issue and to see her swinging and enjoying it was a HUGE accomplishment. My heart was singing. She got to stay for a couple hours before she had to go home. I can tell you though that the two hours she was there she was having the time of her life.
I met several of the church people. I'm telling you, these people are amazing. Ruth Ann, her children, and husband were at the sale all day helping. The pastor's wife(sorry, lost her name) was there all day working with their daughter. Pastor Manning stopped by and we met him. Of course Rachael and her crew were there working. There were so many people. I wish I could remember everyone.
The whole day was incredible. Have I said that before? I have always been on the other side of this thing. You know, the side that does the work, the side that is doing the helping. It's a side I've always loved to be on. I loved the feeling I got when I was "giving". It can almost be addicting if you let it. To be on the receiving side was a little uncomfortable I have to admit. It's hard to NEED help. It really is. I don't know that it's pride. Maybe it is. I can tell you though, that I am so glad that I've had this experience. The feeling you get when you realize you're not alone. This burden is not one you have to bare all on your own is wonderful. It has brought a sense of peace to my turmoiled mind. I never want to forget what these people did for my precious little girl! NEVER.
Saturday, September 6, 2008
Hannah enjoying the slide on the church playground
This is a picture of the sale; shoppers, stuff, and workers. The lady in the brown shirt and pony tail is the pastor's wife. I forgot her name.(my memory is getting BAD lately) Anyway, she was really nice and down to earth. I wish I had gotten a better picture of her and her family. They were great! Her daughter was at the sale and her husband and son stopped in as well.